Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Thursday, November 4, 2010

October Days

Where to start? First I would like to say that I admire those individuals who post a blog like every other day or even weekly. How on earth do you find the time to blog so often while taking care of a special needs child, all the therapies, house cleaning etc etc. I do good to catch everyone up on a monthly basis so WOW, I admire you guys.

To start...

My daughter turned 15 on Oct 20th and passed her driving test. Yay for her.. boohoo for me. This just means I'm going to be terrified every time that she gets behind the wheel of her car. Thank goodness we aren't letting her drive alone until she's 16 or older. How on earth has it been 15 years already?

Zach... he turned 11 on Oct 27th. I'm glad he's still a momma's boy and doesn't mind kisses in public. I need to hold on to the next couple of years b/c he'll be out there driving before I know it. 11 years, WOW.

Landen turned 6 mos old on the 28th! Happy 6 mos Birthday to him too! He continues to do well with therapy and suprises his therapists every day with new and exciting things he's doing.
He LOVES his cereal with pears now and actually opens his mouth for it instead of me tilting his head back in order for him to swallow it. (I wasn't doing that b/c I was FORCING him to eat.. his palate is too high so it took him awhile longer to LEARN to eat and swallow solid foods) He says Mmmmmmm after every bite of cereal. He's too stinkin' cute!! He's getting very verbal and loud. If you aren't talking to him or giving him attention he'll get louder until you look at him. He's precious!

We wanted to take a family trip to pick out pumpkins and eat ice cream but Lexi decided it would be more fun to go to the mall with her friends and Zach thought it would be more fun to go hunting...so Ron and I took Landen to the Peach Tree in Filbert SC to look at pumpkins, take a few cute pictures of him and eat some GREAT ice cream/milkshakes.

We went to the Halloween carnival at the YMCA and Lexi and Zach volunteered to help with the games and food concession stand. Here are a few pictures of Landen dressed up in his bat costume. What a cute bat!! As you can see, Lexi and Zach are too old to dress up anymore for Halloween. :o(


We missed our Trunk or Treat at church because Landen and I were both sick. By the looks of the pictures that were posted on FB, they had a GREAT time and we hate we missed out on that. We are still sick, but getting better.

Landen got his 6 mos old shots and a flu shot at the Pediatricians office. What a BIG boy. His weight now....a whopping 15 lbs and 4 oz. It's hard having a baby that is allergic to Latex b/c all the injections have latex stoppers. So it was an ordeal at the peds office with them trying to order pre filled injections with NO latex toppers. They ended up figuring a way to give him his flu shot and 1 other shot without the latex topper but the other 2 had to have the latex topper...so, he did get a very small rash on both legs where the shots were given.
We now have 1 other specialist added to our list, an ENT. So now we see a Urologist, Neurologist, Orthoped, ENT, OT and PT, and soon another specialist... a speech therapist. Busy Busy days.

What's to come in the next few months.  We have an appt at Shriners for Landen's Urodynamics test. Urodynamics is a study that assesses how the bladder and urethra are performing their job of storing and releasing urine. Landen does not have control over his bladder but we need to keep check on it to make sure it's not getting worse where we might have to start catherizing him. Lets hope and pray that that test goes well.
In January, we have a Myelo clinic at Shriners and we are hoping that Landen will get his AFO's ( ankle foot orthotics) and possibly a walker. Yeah for Landen!! Boohoo for mommy because that just means that he's getting older and not a baby anymore. :o(



I'll leave you with a cute video of Landen laughing at his brother. It's not great quality b/c it was recorded off of Ron's phone but it will do until we can get a "real" recorder. ENJOY!!



Also, one other video..My Spina Bifida moms can appreciate this and understand the joy of seeing this.
Landen has started kicking his legs like a crazy man, especially while changing his diaper which doesn't make it easy for mom.