Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Monday, October 18, 2010

I found this awesome poem and wanted to post it for you all to enjoy as well. We are so thankful that Heavenly Father chose us to be the recipients of a priceless blessing.




HEAVEN'S VERY SPECIAL CHILD

A meeting was held quite far from Earth

It was time again for another birth.

Said the Angels to the Lord above –

“This special child will need much love.

“His progress may be a little slow

“Accomplishments he will eventually show.

“And he'll require extra care

“From the folks he meets down there.

“He may not run or skip or play

“His thoughts may seem quite far away

“So many times he will be labeled

“'different,' 'helpless' and disabled.

“So, let's be careful where he's sent.

“We want his life to be content.

“Please, Lord, find the parents who

“Will do a special job for you.

“They will not realize right away

“The leading role they are asked to play.

“But with this child sent from above

“Comes stronger faith, and richer love.

“And soon they'll know the privilege given

“In caring for their gift from heaven.

“Their precious charge, so meek and mild

“Is heaven's very special child.”

Three Amazing Individuals


It's been a long time since my last blog. My life is crazy busy and not ALWAYS just about Landen. I know it might seem that way considering I have a blog dedicated to HIM and I talk about Spina Bifida all the time on FB but really my life isn't just about HIM.

I have 2 other beautiful,talented,just as brave children and I feel the need to talk about them this time and of course a little about what's been going on with Landen the past few weeks.

Lexi~ 

My beautiful daughter who is turning 15 on Wednesday (20th). Oh how time flies. I can still remember dressing her up in all the cute little girl outfits, taking pictures of her first day as a Pre K student, going to her dance recitals and painting her nails the same color as mine. Now, she's a texting queen (more than 1500 texts sent out in a month).Hangs out with her friends ALL weekend, goes to football games WITHOUT me and her stepdad,wants to drive everywhere and likes boys (yikes). She's such a social bug and has lots of friends! She loves Mcdonalds and hates my cooking, likes the color green, she's not into Aero anymore, but has moved on to Hollister and AE (of course more expensive) she has a cell phone fetish and upgrades her phone more than I color the gray out of my hair. I LOVE HER!

Zachary or Big Z~

He'll be 11 on the 27th. It too seems like it was just yesterday that lexi was dressing her brother up in her dress up clothes and making him play dolls with her all while watching Barney! I remember telling Zach that he had to leave his passies under the Christmas tree for Santa to get before he would leave him any toys (he was 3 yrs old and nothing else worked)I too remember dropping him off for Pre K and crying because my baby was growing up. Now he will soon be 11 and he's ALL boy. He eats, drinks, breathes, lives for hunting and baseball. He hunts everyday after school and all weekend with his grandpa or his dad. During the Spring it's all about baseball. He made the Allstars last season and he is one of the best players on his team. I have recently let him have a FB and he too stays on his cell phone and texts but not as much as his sister. Zach is the most caring young boy and has often gotten teased at school for taking up for special needs children or children with learning,behavioral problems. What a great example he is to us! I LOVE HIM

Landen~

Our sweet monkey. He is growing so fast and will be 6 mos on the 28th. He's been sick lately with a terrible cold/sinus infection.(I assume it's a sinus infection) I have yet to get another Pediatrician for him that is capable of taking care of his needs)Plus his old pediatrician is against prescribing antibiotics so what's the point of taking him in?
Landen is now sitting up by himself for short periods of time, holding his head up REALLY good(no more bobbing of the head) and he has started to reach for things.YEAHHHHH what an accomplishment for our little man. Doesn't seem like a big deal, but it truly is to us. The smallest accomplishments don't go unnoticed in our house! He has now started to eat a little bit of cereal with pears mixed in. He's such an amazing little baby boy, happy as can be ALL the time and has brought so much joy and happiness in our lives.

So...I know it's been a long time since my last blog, but it's been busy around our house like always. I am just taking one day at a time and enjoying every minute of my life and being thankful for all that God has given me. My life is WONDERFUL!