Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Thursday, February 10, 2011

SHRINERS VISIT

It was a long day of seeing Dr's but alot was accomplished. His Urologist says that his bladder/VCUG test was good so we still don't need to cath him and we are waiting for his scheduling nurse to call so we can get Landen's circumcision set up.

His Neuro (Dr Troup...who we LOVE) said everything looks great with his shunt, it's working like it should so we don't have to have another CT for another 3 months.

Ortho... Landen was fitted for his AFO's and we will be picking those up on April 28th. They didn't have any real cute boy patterns so we did the white AFO with a Gamecock on the back. I'll "boy" it up when we get them.

Little Monkey has learned to shake his head no, so when Dr Troup peeked his head in the door yesterday, he asked Landen if could come in and Landen shook his head NO, and kept shaking his head no! It was so cute and Dr Troup thought so as well.

After we were finished at Shriners, we were sent down the road to this prosthetic/orthotic place where Landen was casted for his AFO's. I wish I had had my camera b/c bless the young guys heart who was trying to put casts on both of Landen's legs. Landen has limited movement is his R leg and he moves the L leg really well...Wellll, he decided to be a wiggle worm and kick his legs like a crazed lunatic while the boy was trying to cast him. He had to start over 3 times b/c Landen wouldn't be still. I can't remember the guys name but he was trying to talk to Landen and preoccupy him while he did his job but everthing he said to Landen, Landen just shook his head no! I assure you I wasn't just sitting there laughing I was indeed trying to help.
Oh...and don't let me forget to tell you about his little "accident" before we were even seen by the Dr's @ Shriners.

Let me just start by saying that my nose has been stopped up and I can't smell anything or taste anything right now but I DO know that when my son is really quiet and sitting still he's making a really dirty diaper for me. Landen was extremely quiet for the last 15 minute drive to Shriners but I didn't think anything about it b/c he has been sick himself plus he had just awakened from a long nap. Well, I get the stroller out, play peek-a-boo for a minute with him before I reach in to get him out of the car seat and I smell something funky and his diaper is a little more squishy than normal and his legs feel a little wet..."Oh crap" literally!
We get upstairs wait to check in(because there are several people walking in, I want to get checked in first so we don't have to wait so long)Now the smell is not really bothering me b/c my nose is stopped up but it has to be pretty bad b/c I smell it a little(sorry to the people behind me)... Landen is getting a little cranky( I find it amazing that he HATES to have a dirty diaper but he can't even feel anything from waist down??)He knows when he has made a dirty diaper some how?? After we get checked in, bracelet on, Landen got a stuffed animal(as he does everytime he goes)we head to the changing table..dun dun dun..... I take his shoes off, then the socks, pull the pants off and the poop is EVERYWHERE!!! All down his legs, up his back, up his front side."Geez kid, could you not have waited until we got home so I could have given you a bath"? It took me 20 minutes and an entire bag of wipes to get him cleaned up. It's not easy trying to clean a boy when all he wants to do is grab his "peeper". I'm trying to hold 2 legs up, wipes in the other hand, and keep him from grabbing a poopy peeper.. not easy!!! He had poop all on his hands etc. Needless to say, the clothes went in the trash can and I disposed of that trash bag.(sorry people of Shriners hospital if you used the bathroom after Landen was in there..sorry for the stinch, and sorry that you had no trash bag in the trash can)

What a day...What a day!!! Going to Shriners is always an adventure for us!! Will post pictures of our sweet monkey later!

Monday, February 7, 2011

9 months

Last week we had Landen's 9 mos check up with his Pediatrician, Dr Cook. He is impressed by all the wonderful things Landen has learned since his last visit. (Our baby is wayyyyyyyy smart! =)


As soon as Dr Cook came into the room, Landen gave him a big wave and pretty much leaped into his arms. Dr Cook loved on him a little bit before Landen tried to yank his glasses off his head. =)
Landen is now 17lbs 9.5oz. He's still a little under weight and shorter than most babies his age. I'm ok with that!
Nothing really new with Landen. He's still saying momma,dadda,bubba,ba ba and bye. He waves bye bye, which is so cute I must say. No new words yet but he has learned to literally scream....not a cry....a scream when ANYONE is talking and NOT looking at him or talking to him, he SCREAMS as loud as he can until you look at him....then he smiles! =) Ron thinks it is cute but I don't think so especially when we are out in public. He does it in the car when it's just me and him. A few days ago while driving to the Dr's appt I was talking to him but obviously not looking at him behind me, and he just starts yelling UNTIL I pull my visor down, open the mirror part, and LOOK at him while I was driving...he just smiled and laughed.

Way back when...I don't know, several months ago I heard a statistic that minivans were the automobiles that were most involved in car accidents. huh? Not some red sports car, or the BMW with a business lady driving while talking on her cell phone or texting...nope, a minivan driven mom! So, I'd like to broaden that category of "the car involved in most accidents" to be "any car driven by a mom"!!!
In my defense, as well as to all those other moms out there doing this...I'm a pretty good knee driver. And I suppose that driving while my hands are placed on the 10 and 2 o'clock positions just might be the smarter way to drive, but really? If I didn't look back or hand the kids something or reach back to the back to pick up a dropped toy or blanket, or pick up dropped food (you get the point)I might begin to wonder what might be more dangerous...me loosing my grip on the steering wheel, or me loosing my grip on my sanity??
So, to all those moms out there,mini-van driven or not..handing back bottles, paci's,wiping noses,dancing,yelling,picking up toys, refereeing fights,handing out snacks, or like me...just talking and looking at your little angel in the mirror....do your best to survive...with your sanity and your life! DRIVE SAFELY!!!(Also, I am FULLY aware of the importance of driving safely and paying full attention to the road)I'm doing the best I can!

HEALTH UPDATE...
Landen has an appointment Wed at Shriners for the Myelo clinic(Spina Bifida Clinic)which at that time he will see all his specialist. Hopefully Dr Troup will decline the need for an MRI, his Urologist(Dr Teague) will FINALLY decide to schedule his circumcision, and his Ortho will fit him for his AFO's. Landen's right leg is shorter than his left so he needs a lift on his right shoe as well. I'm not sure if Shriners will do that for us or if we need to take his shoes to a shoe store that does that sort of thing...I guess we'll find out on Wed.
He should be getting his stander within the next couple of weeks and we are really excited about that. We will post pictures of our handsome boy standing as soon as we get the stander.
Friday Landen started showing signs of a cold and last night his symptoms got worse. His (R) eye is beginning to ooze(yes, I know that's a gross word)greenish drainage, he is choking on nasal drainage, if you put your hand on his back, you can feel a rattle, throwing up after atleast every few ounces of milk, low grade temperature and just clingy..poor, sweet baby. I was going to try and hold off seeing his pediatrician and wait until we go to Shriners(just because I am more comfortable with the Dr's at Shriners treating him and prescribing medicines, but not sure if we can do that.) He's already on a twice a day dose of antibiotics for his bladder,infant tylenol for fever, benadryl for sneezes and coughs, and he's also doing neb treatments so I am not sure what else they could do for him. I hate seeing my sweet boy sick but LOVE the clingy, I just wanna lay on you time with him!! I am soooooooooooooooooooooooooooooooo ( did I say soooooooooooooooooooooooooo) thankful that I get to be a stay at home mom. NO amt of money could get me to go back to work and leave my sweet baby. I do miss taking care of my patients, I miss giving shots( go figure)and doing x-rays but being a stay at home mommy is PRICELESS and wouldn't go back to the days "before Landen" if you paid me!!!!!!!!!

That's all for today...will update Wed after his appointment.

Have a blessed week!