Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Wednesday, June 6, 2012

Allstars!!

Just want to give a little "shout out" for my baby boy Zach! He's 12 1/2 so he's not really a baby boy, but he'll always be my baby...even at 21!  Zach is really competitive, loves playing all sports, and is an all around athletic kid. He has made the allstars team the past several years and this year he passed up his vacation to NY with his dad over the 4th of July to be able to play in the Allstars games! It is a great honor to be chosen as an Allstar! Zach will also be trying out for JV baseball with the Highschool kids next year (he's only in the 7th grade). I know that this kid will be getting a scholarship to play baseball at College. (Let's hope it's with USC~ Gamecocks) :)





Way to go Zach, Moms is super duper proud of you!

Monday, June 4, 2012

B.R.A.V.E.S!!!

Me and the kids gave Ron an early Father's Day gift. He loves the Braves and Dale Murphy has ALWAYS been his hero so we thought we'd get some tickets to see the Braves PLUS they were having a concert afterwards... American Idol winner of season 10, Scotty McCreery! Lexi was super excited! Landen however, I knew would not be as excited. Landen doesn't like loud noises and he tends to freak out. I was right! I knew he would HATE it!  We took the 4 plus hr drive to Atl which wasn't bad at all for Landen. We got there,  unloaded the van with all our goodies, wheelchair, diaper bag, etc and started our way to the gates...Upon arrival Landen started crying/freakin out before we even made it through the gates...2 seconds later....V.O.M.I.T. all over the place. (embarrassing) Finally calm Landen down for a brief second, enter the gates, crying starts again. Finally, after making our way to our seats, Landen is now "semi ok", Landen wants his "wa wa". Few minutes after the Braves start, Landen is already soaked in sweat, ill from the heat, has had a cup of yummy, thickened, pediasure and  blows chunks everywhere...even splatters on the back of the chairs in front of us. (Sorry people) I apologize to the people in front of us...they leave and don't return until the very end of the game. :(
I smelled of spoiled vanilla pediasure(not a good smell) my watch had dried vomit all in the creases, I had stains of dried vomit on my shirt and shorts and  Landen was sweaty and smelled horrible and it was miserably hot!!! The rest of the family had a great time though and the girls loved Scotty McCreery! Let's just say I will not be making any more plans to see the Braves for a long time.










To make our trip even better, on the way home, a little after midnight, Ron gets a speeding ticket. Not just a little speeding ticket. AND, the Trooper was- a -Jerk!!!!!
What a terrible,horrible, sucky, wonderful trip we had!
Happy early Father's Day sweetheart!!

Sunday, June 3, 2012

My security "blanket"

Most kids have either a passy (which Landen NEVER took) or they suck their thumb (which I had WISHED Landen would have done...because it is oh so stinkin' cute) or they have a special blanky that looks all ragged b/c they carry it everyhwere (Landen has never cared for any of these items) HOWEVER, his security blanket is a....... BASEBALL!  Landen has ALWAYS loved a ball...any ball. He has really grown attached to his baseball though. He takes it everywhere we go and even sleeps with it. He still loves his "moe moe" doll and still sleeps with it as well, but he HAS to have his baseball with him all day! 

So, even though Landen is not attached to a ratty little blanky that he has carried with him since birth, I guess I can deal with his "security blanky" being a baseball! :)






Zach's baseball coach gave Landen a team baseball hat the other day. Landen LOVES watching his bubba play ball and his coach has grown to like Landen (Duh, who wouldn't). Landen cheers for his bubba during the game and likes to wheel his chair over to the dugouts to give his bubba a good luck "fist bump" So, I guess it was only natural to make Landen a "part of the team" by giving him an extra team ball cap. Landen's #....16!   :)

Gosh, i love this kid!