Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Thursday, March 29, 2012

AS PROMISED - Landen and His Walker

Landen Using His Walker

Click on the link above to see an angel walking!  Our excessive pride of Landen is simply immeasurable.  =)

Thursday, March 22, 2012

Landen's 2nd birthday is coming up and I am soooooo not ready for him to be 2. I LOVE him at this age and wish I could bottle him up and savor this age for a little while longer...  Although he has definitely started with the terrible two tantrums and such that I am not so fond of!!! And he gets into E.V.E.R.Y.T.H.I.N.G. in a split second.

His party theme this year is Moe Moe (Elmo). He gets so excited when he sees me looking online at party stuff/supplies/gifts/anything Moe Moe related. He wants to wear his birthday shirt everyday! After bath time in the morning I will ask "Ok Landen what are we going to wear today?" and his response..."moe moe" :)

There hasn't been too much going on with us which is why I haven't blogged. He's doing pretty well. We haven't used his feeding tube in several weeks which is a blessing. We don't have another swallow study until  June though and we can't have the feeding tube removed until that is completed PLUS after the swallow study...if everything is normal with the study... we still have to wait 3 mos after the swallow study to make sure he isn't going to need it again before they consider removing it. :(  

He's doing great with his walker. He prefers his "vroom vroom" over walking though! I don't blame him much b/c he gets so tired from walking just a few feet and his legs just give out on him. I get tired just from watching him.

Landen is in our friends wedding next week. I am soooo nervous. I can see him now ramming into every isle with his wheelchair and throwing a tantrum in the middle of the wedding. Insert....sweat dripping from my head, palms sweaty just thinking about it. I'll let you know how that goes!

We leave for the beach April 1st. We will be gone 6 days and I can't wait! I need a vacation. I really think Landen will do well this year with the sand. His therapist has been working with him on his texture issue with sand and he is doing so much better. We actually bought him a sandbox for home and he likes it! I can't say that he loves it but he LIKES it.

And lastly... Ron has a second interview with Newberry YMCA next week. It's now down to him and 3 other guys. They are holding a banquet for the guys Monday night to meet and mingle with some community leaders and such. We are praying that this will work out and he will be offered the position. This would be a great opportunity for our family and we are all excited about the possibility of moving to Newberry. BUT... either way, we LOVE Rock Hill and we would be happy either way...just more happy in Newberry making more money! :)

Enjoy the pictures. I will post a video of him walking really soon.

Landen is enjoying his sandbox!








Everything is a hat! If it can fit on his head...it's a hat!



What a great sissy! We moved the sandbox under his swing set so he wouldn't get sun burned! I think he likes it better under here anyways. :)



Look at my handsome boys! They wanted to dress like "monkey". Copy cats!!



Look at my baby cheezing ( all 3 of them)



I could T.O.T.A.L.L.Y. eat him up!




I'm just taking a "wa-wa" break, Cruising around the church will wear you out!



He knows exactly where Jesus is!