Lets just say that I am getting old...er! My BEAUTIFUL daughter, Lexi, turned 17 this past Saturday~ It seems crazy for me to be saying that! Where did the time go? Next weekend I will be blogging about my son turning the BIG 13!!! His birthday is NEXT Saturday.
My kids don't like to have parties so they always get to decide what they want to do for their birthdays. For the past several years BOTH Lexi and Zach say they don't want to do anything other than go out to eat. WHAT? I tried to get Lexi to have a BIG 16th birthday party last year and NOPE she didn't want that. I tried to get her to have a party this year and NOPE she didn't want that. What did she want to do? Pedicure and eat at Steak N Shake. Ok...so that's what we did as well as went to the Peach Tree and picked pumpkins and ate some of their amazing ice cream. ( No pictures of Zach b/c he was too busy hunting for some deer at the hunting club)
Zach has already chosen what he wants to do next weekend...HUNT with pawpaw, go to CiCi's and go kick field goals at the school. Yep, those are my children. Nothing fancy, nothing expensive...except for their gifts! =)
Next year though... A CRUISE SOMEWHERE for their birthday's since they are a week apart and Lexi will be 18! Simple as that!! =)
Update on Little Landen... Still gaining weight, still throwing up, GI appt this week, new walker on loan b/c his other one is "too advanced" for him and he is not walking well, he has a nasty cold (WELCOME cooler weather...we will keep a cold until Spring..Happy Happy Joy Joy!!!) Still has MAJOR issues with food and I can't get him to eat meals...or anything other than doritos, terrible 2 tantrums still exist, not sleeping all night...STILL !!!!
Update on Home Study... We are done! Thank goodness. Now, just praying that the right child for our family will come along SOON!!
Enjoy pictures from this weekend...minus Zachary..again, he was hunting! =(
Can't wait to post pictures of Landen's Halloween costume. We borrowed the idea from a "blog friend" that is super crafty, creative, and simply WONDERFUL! Thanks!!!
Welcome
Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!
The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.
Please feel free to contact us @ ronandtosh@comporium.net
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!
The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.
Please feel free to contact us @ ronandtosh@comporium.net
Monday, October 22, 2012
Friday, October 5, 2012
Invasive or Less Invasive?
LET'S GO WITH LESS INVASIVE!!
Tuesday was a VERY long day! We had a head CT/ shunt series in Greenville first. I HATE CT's! Usually Dr Troup orders them with sedation but this time he didn't. (Sorry Radiology nurses... I warned you!!!) I told you from the start that he was going to throw up...twice.... you'd have to restart the CT 2 times and I'd end up laying on top of him and holding his head down! So...what happened? Threw up twice, restarted the CT twice and I ended up laying on top of him for the procedure! Good thing I know my son and took an extra pair of clothes. Left GMH, went to Troup's office. (neuro) CT looked great, shunt working and draining like it should! So what now? He throws up twice a day...power vomits. I buy new car seats like they are going out of style and I spend more money cleaning my carpets in the van than I'd like to.
Dr Troup suggested : It could still be his shunt. He has a type of shunt that drains constantly and SLOW. It could be building up pressure and not draining quickly enough so he could go in and change the valve to a different type. (require surgery)
Admit Landen to the hospital..put in a "bolt with a pressure gage on top" and try to INDUCE vomit. This will tell him at what pressure he starts to throw up...adjust his shunt with the information he gathers from that. (require admission and surgery)
Refer him to a GI in Greenville (since Levine's GI Dr's aren't good either) and run tests to see if he is digesting his food "normally" (require more scans and throwing up and tantrums, more hatred for Dr's, and depending on the results....surgery)
Or... he's aspirating and that's what we will deal with the rest of his life....or he is having migraines which can cause him to throw up..he does tell me his head hurts and slaps the back of his head....At this point, I don't know what's going on but we CHOSE the LESS INVASIVE...GI appt in Greenville and go from there! (Apology in advance to the nurses and GI Doc we will be seeing soon! My son HATES Dr's and nurses of ALL kinds... no matter how funny you are and no matter what kind of sticker you offer him! Just saying!!!!)
A few picture updates...
Landen LOVES his backpack and thinks he is going to school...until I told him I couldn't go with him! He quickly changed his tune on the whole school thing! =)
Yesterday he said, "mom, walk, backpack, school, c'mon" Which meant he wanted in his walker...with the backpack on, and I was going to school with him! He walked towards the door and said "c,mom mom!" I told him I couldn't go to school with him that schools don't allow mommies to come with them. He started to cry and said "me, home" =)
Tuesday was a VERY long day! We had a head CT/ shunt series in Greenville first. I HATE CT's! Usually Dr Troup orders them with sedation but this time he didn't. (Sorry Radiology nurses... I warned you!!!) I told you from the start that he was going to throw up...twice.... you'd have to restart the CT 2 times and I'd end up laying on top of him and holding his head down! So...what happened? Threw up twice, restarted the CT twice and I ended up laying on top of him for the procedure! Good thing I know my son and took an extra pair of clothes. Left GMH, went to Troup's office. (neuro) CT looked great, shunt working and draining like it should! So what now? He throws up twice a day...power vomits. I buy new car seats like they are going out of style and I spend more money cleaning my carpets in the van than I'd like to.
Dr Troup suggested : It could still be his shunt. He has a type of shunt that drains constantly and SLOW. It could be building up pressure and not draining quickly enough so he could go in and change the valve to a different type. (require surgery)
Admit Landen to the hospital..put in a "bolt with a pressure gage on top" and try to INDUCE vomit. This will tell him at what pressure he starts to throw up...adjust his shunt with the information he gathers from that. (require admission and surgery)
Refer him to a GI in Greenville (since Levine's GI Dr's aren't good either) and run tests to see if he is digesting his food "normally" (require more scans and throwing up and tantrums, more hatred for Dr's, and depending on the results....surgery)
Or... he's aspirating and that's what we will deal with the rest of his life....or he is having migraines which can cause him to throw up..he does tell me his head hurts and slaps the back of his head....At this point, I don't know what's going on but we CHOSE the LESS INVASIVE...GI appt in Greenville and go from there! (Apology in advance to the nurses and GI Doc we will be seeing soon! My son HATES Dr's and nurses of ALL kinds... no matter how funny you are and no matter what kind of sticker you offer him! Just saying!!!!)
A few picture updates...
Landen LOVES his backpack and thinks he is going to school...until I told him I couldn't go with him! He quickly changed his tune on the whole school thing! =)
Yesterday he said, "mom, walk, backpack, school, c'mon" Which meant he wanted in his walker...with the backpack on, and I was going to school with him! He walked towards the door and said "c,mom mom!" I told him I couldn't go to school with him that schools don't allow mommies to come with them. He started to cry and said "me, home" =)
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