Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Wednesday, December 8, 2010

Saving Shea

Please Help


This child is in need of your help. I wish my husband and I could adopt him ourself but we do not have the funds. Please help this child find his forever home and make it easier for someone to afford to adopt him. This child has the same issues as our sweet baby Landen. He too has Spina Bifida, a shunt, bladder and bowel problems, no feeling in his legs and can't walk or stand. Landen has a mommy and daddy that love him very much and will give him the world, something that  Shea needs. He needs a home and parents to love him and kiss him and tell him everything is going to be ok. He needs a mommy to hold him when he doesn't feel good or tell him he is smart and can do anything he puts his mind to. He needs a mommy and daddy! Please visit Shea's blog and do what you can to help us save Shea.

http://www.savingshea.blogspot.com

Tuesday, December 7, 2010

LOTS TO TALK ABOUT

Lots to talk about... To catch up on things
Poor Landen has had a bladder infection for the past 2 months and continues to have one even while on the antibiotic.They quadroopled the dosage the last time we were at Shriners Hospital. We will be going back to Shriners on Dec 9th to have a Urodynamics test. In January we go for the Myelo clinic and will find out then if we need to start catherizing him. ;o( I'm not sure how I feel about having to catherize my 8 mos old but we'll do whatever will help our baby.
He continues to do well in therapy and the plan is to get him fitted for a stander within the next 2 weeks.
We had to order him "hip Helpers" that will keep his hips and legs closer together so he can learn to crawl. His legs are sorta "froggy style" or tend to spread out like that once he's on the floor.
We went shopping at the Southern Christmas Show where Landen sat on Santa's lap, which by the way was sponsored by Shriner's. As you can see, he LOVED it. I guess Santa whispered "if you give me a BIG smile, I'll bring you lots of toys." He loved being around all the people shopping. You see..Landen is a very nosey baby and he has to see what's going on around him. Needless to say he didn't have a nap all day because he was afraid he would miss something.

Thanksgiving was WONDERFUL. Lots of tasty, fattening food and "fat free desserts" (sarcasm). Then the boys worked off their meal playing basketball at the YMCA and indoor Football.

Lots to be thankful for this year.!!
1. First and most importantly we are thankful to God, a loving Heavenly Father who watches over us and blesses us beyond measure.
2. Landen B Black~Yep, our sweet sweet Monkey. Our life is complete with our sweet baby. We can't forget Lexi and Zach, 2 amazing, loving, sweet individuals who also complete our life.

3. Family: Ron and I both have such great families. We are thankful for them and love them so much.
4. Shriners Hospital... I can't say enough about them. We truly are grateful for their service and compassion that they give the many children that they see. Thanks for taking such good care of Landen.

5. I could go on and on about all the things that I am thankful for but I want to say how thankful I am to my wonderful husband Ron. He is my rock, my strength, my best friend, my therapist (lol), the best daddy in the world!! Thanks honey for being so wonderful. We are truly blessed!!


Landen had a Dr's appt for his Eczema and they prescribed a steroid cream and also did some blood work to see if he is allergic to anything. Well.... I found out yesterday that he is highly allergic to cats. ;o( We have 2 cats that we love that we are now going to have to find good homes for. It makes us sad, but we need our sweet baby to get better.

He has a list of a few other things that he is allergic to as well starting with Egg whites, Egg yolk, Peanuts, cats and border line Cow's milk. GREAT! Just something else to worry about!!!

That's it for now. I'll keep you posted on Landen's Urodynamics test. We won't get the results until we go back in January.

Now we are just waiting on Santa to come!!!! Can't wait