Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Tuesday, August 14, 2012

A Taste of Crazy

It seems lately I am late for E.V.E.R.Y.T.H.I.N.G.!!!  I can't keep my head on straight! I will leave the house, get down the road and realize I left something and have to turn around or I just simply can't get out of the house on time for the life of me? On days that we have therapy, I seriously feel like I am running around the house like a crazed lunatic until the time I dash out the door. I seriously have too much going on and I'm always in a chaotic rush~ So, what do I do to add to the crazy??? Decide to homeschool my 7th grader ALONG with my 11th grader! Yes, this is a taste of my crazy...and to add another adoption... A Taste of Crazy!

Some days I feel like resigning to my bosses (AKA...my kids) =)
It's those days when I am in my chaotic rush( 6 days out of 7) when we have 3 therapies a day, Dr. visits on top of that, baseball practice for 2 hrs, grocery shopping, paying bills, cleaning house, cleaning up throw up, wiping a dirty bum, being a referee between the kids b/c all I hear is "Mom, Landen is getting on my nerves" , Landen screaming "mom, mom, mom, mom, mom, mom, mom, on and on and on", phone calls making f/u appts for Landen, trying to get everything ready for homeschooling 2 kids, cleaning up toilet paper in the bathroom or plunging the toilet b/c Landen just likes to take toilet paper and flush it in the potty, cleaning up cereal that Landen got out of the cupboard and decided to dump on the floor and kick it all around.. Need I go on? It's those days that I want to resign! So here is my letter of resignation~

08/14/2012
Name: Tosh Black
Position: Doer of EVERYTHING

Dear Sirs and Madam, (Lexi, Zach, and Landen)

I am writing this letter to inform you of my decision to resign from my current position. I have reached this decision after a very long prayer and after our inability to communicate effectively and my ongoing frustration as manager of this establishment (The Black's House) because of the fact that no one seems to hear a word that I say...EVER!!

I have worked for you for ..going on 17 yrs now and will continue to work for you until you can find an adequate replacement that is willing to work for free and meet your unending demands requests! (Good luck with that) I am hopeful that you will find someone that can handle the constant fits, writing on the walls, unending messes, food spills, talking back from teenagers, constant friends over at the house, and constant travel that this job requires... etc, etc, etc.

I am taking away with me some important things that I have learned from working here including how to not pull my hair out patience, almost cursing under my breath communication skills, and removing ink from the leather couch, problem solving skills.

Thank you for this opportunity to be abused serve this Company (The Blacks)

I will end this letter without saying anything else b/c One of you is pulling at my pants leg and screaming "mom, up!" and needs to be changed or fed or bathed or I need to clean up the newly spilled fruit loops on the floor!

(Before anyone gets their panties in a bunch, I don't want to resign from my job as a mom, this was meant to be sarcastic so please don't write me and tell me that I shouldn't be adopting another child if I can't handle the 3 that I already have)

Sincerely,

Mom of 3 and soon to be 4!

(No, this is not me but how I feel!)


Friday, August 10, 2012

Homeschool, back to school, baseball, therapy, vital stim, and Milkshakes!

Well this summer has really been too hot to enjoy! We've gone to the beach, we've gone to Atl to see the Braves, went to all the Allstar games that Zach played in (in 100+ degree weather) we've continued Vitalstim therapy,  OT, PT, Speech, Shriners visits, Ultrasounds, MRI's, CT's and we've eaten lots of Milkshakes (Landen's favorite!) 

Now it's time to get ready for Back to school! =(    

  1. Baseball practice and games
  2. VitalStim Therapy
  3. OT
  4. PT
  5. Speech
  6. Shriners and other Dr appts
  7. Homeschool (Lexi) 11th grade
  8. 7th graders homework and projects. I'm going to vent for a few minutes on this subject! I graduated from HS in 93' and I paid my dues doing homework and projects and I went to College and paid my dues there as well with papers, internships,etc. WHY ON EARTH do my kids have homework that I have to assist in, projects that need PARENTS to make stuff (I'm not a crafty chick so I usually have my mom help with these things) But it's not just Zach going back to school, it's me too!

ANYWAYS... An update on Landen and his therapy~

VitalStim is going well (I think). Lets just say he is tolerating it -somewhat-  We won't know if it's really helping until we have another MBS sometime late Aug.
He is graduating from Occupational Therapy at the end of August! =) 
He still has texture and sensory issues that he will ALWAYS have but he has made some huge strides and we will continue to work on those things at home.

His PT thinks Landen is "overweight".  Landen doesn't like to walk in his walker and his therapist thinks it is b/c he is getting fat and lazy. He's 2!  He has hip dysplasia as well so I know it's not easy for him to walk with one leg shorter than the other, no muscle tone in his legs (he gets weak trying to hold up all his weight) and it's not b/c he is fat. I mean he's 2 and wears a 3T and some 4T shirts... but he aint fat! =)
My boy loves him some Mcdonalds! Typically when we leave therapy Landen says "fry- ice cream" and momma gets her fat boy some fries and a milkshake!  He's had his feeding tube for 9 mos now and he use to not be able to eat anything without aspirating/choking and throwing up but since we have been doing VitalStim he hasn't thrown up nearly as much...so when Landen wants something to eat now...anything to eat.... I happily get it for him!

What else?
  • He has been casted for new AFO's and we are waiting on those.
  • Our Shriners visit Wednesday went well, we received results from his ultrasound, CT, and cervical spine. All were fine. His bladder doesn't hold as much as they would like BUT atleast we are still cath free! There is no damage to his kidneys so that is GREAT and his shunt is draining perfectly. Cervical spine was good, he does have a curviture but it hasn't gotten any worse. GOOD NEWS! =)

Lastly.... We are waiting to complete our HS. Our Social Worker is 99% finished with the homestudy but we have 1% left before we are completely done! Thank the good Lord! Going through this process for the second time around is even harder.  Can't wait to add some pictures of our newest addition when we finally adopt again!

That's it for now!
Will download some random pics from this summer really soon!