Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Friday, August 10, 2012

Homeschool, back to school, baseball, therapy, vital stim, and Milkshakes!

Well this summer has really been too hot to enjoy! We've gone to the beach, we've gone to Atl to see the Braves, went to all the Allstar games that Zach played in (in 100+ degree weather) we've continued Vitalstim therapy,  OT, PT, Speech, Shriners visits, Ultrasounds, MRI's, CT's and we've eaten lots of Milkshakes (Landen's favorite!) 

Now it's time to get ready for Back to school! =(    

  1. Baseball practice and games
  2. VitalStim Therapy
  3. OT
  4. PT
  5. Speech
  6. Shriners and other Dr appts
  7. Homeschool (Lexi) 11th grade
  8. 7th graders homework and projects. I'm going to vent for a few minutes on this subject! I graduated from HS in 93' and I paid my dues doing homework and projects and I went to College and paid my dues there as well with papers, internships,etc. WHY ON EARTH do my kids have homework that I have to assist in, projects that need PARENTS to make stuff (I'm not a crafty chick so I usually have my mom help with these things) But it's not just Zach going back to school, it's me too!

ANYWAYS... An update on Landen and his therapy~

VitalStim is going well (I think). Lets just say he is tolerating it -somewhat-  We won't know if it's really helping until we have another MBS sometime late Aug.
He is graduating from Occupational Therapy at the end of August! =) 
He still has texture and sensory issues that he will ALWAYS have but he has made some huge strides and we will continue to work on those things at home.

His PT thinks Landen is "overweight".  Landen doesn't like to walk in his walker and his therapist thinks it is b/c he is getting fat and lazy. He's 2!  He has hip dysplasia as well so I know it's not easy for him to walk with one leg shorter than the other, no muscle tone in his legs (he gets weak trying to hold up all his weight) and it's not b/c he is fat. I mean he's 2 and wears a 3T and some 4T shirts... but he aint fat! =)
My boy loves him some Mcdonalds! Typically when we leave therapy Landen says "fry- ice cream" and momma gets her fat boy some fries and a milkshake!  He's had his feeding tube for 9 mos now and he use to not be able to eat anything without aspirating/choking and throwing up but since we have been doing VitalStim he hasn't thrown up nearly as much...so when Landen wants something to eat now...anything to eat.... I happily get it for him!

What else?
  • He has been casted for new AFO's and we are waiting on those.
  • Our Shriners visit Wednesday went well, we received results from his ultrasound, CT, and cervical spine. All were fine. His bladder doesn't hold as much as they would like BUT atleast we are still cath free! There is no damage to his kidneys so that is GREAT and his shunt is draining perfectly. Cervical spine was good, he does have a curviture but it hasn't gotten any worse. GOOD NEWS! =)

Lastly.... We are waiting to complete our HS. Our Social Worker is 99% finished with the homestudy but we have 1% left before we are completely done! Thank the good Lord! Going through this process for the second time around is even harder.  Can't wait to add some pictures of our newest addition when we finally adopt again!

That's it for now!
Will download some random pics from this summer really soon!

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