Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Friday, August 20, 2010

New Shunt For BIG L

It was 4:00 this morning when Landen last ate.  He ate well, burped well, and fell quickly back asleep.  A few hours later, I woke up to get showered and dressed to take Zachary to school.  As I checked on Landen, I noticed he wasn't in his ALWAYS typical, extremely happy mood.  In fact, his whiny noises and cries led me to know that he wasn't feeling too well.

As I took Zachary and Lexi to school, I noticed Landen continued to cry and whine out in discomfort and happiness.  When I arrived at work, Landen vomited ALL over the countertop and floor as Tosh held him.  As has happened three times in the last month, Landen's shunt was malfunctioning and his head was filling with fluid.  Like the other times Landen experienced shunt malfunction, he obviously was sick.

Tosh briefly took Landen home and then on to CMC's Levine Children's Hospital.  While waiting in the ER, Landen continued to feel sick and hungry.  Finally, after several tests and consultations, the pediatric neurosurgeon recommended a shunt revision, concluding that the shunt that was placed in early June wasn't sufficient for his needs.

At the present time, Tosh and I are in the waiting room at Levine Children's Hospital.  Landen is in surgery right now having his shunt replaced.  Although we REALLY love the staff and everything about Greenville Memorial Hospital, we chose to stay here in Charlotte because Levine is a wonderful hospital and we won't have as far to travel if there are future shunt problems...Needless to say, I spoke with our Greenville neurosurgeon's nurse to get her opinion.  We REALLY like them!

We'll provide an update soon!  Say a quick prayer for Landen...The good Lord has blessed him tremendously thus far and will continue to do so.

UPDATE...
Monkey not feeling good
Monkey feeling GREAT after his shunt revision!
It's been 4 nights since Landen's shunt has been replaced.  Since then, he has done VERY well with it and seems to be comfortable and, of course, HAPPY.  We're quite thankful to the good Lord that things are going well for him.  I've added two pictures...There's a difference of night and day when
Landen feels bad versus good.

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