Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Tuesday, March 15, 2011


Ok, so I usually blog about Landen simply because we want to raise awareness about Spina Bifida and the joys of raising a child with Spina Bifida. We want to reach out to those individuals who might be pregnant and just finding out that they are about to embark on a different journey than they planned on. Our purpose is to give hope and encouragement to those families. BUT.... yesterday my daughter asked me WHY don't you have a blog about me and Zach? Why don't you ever talk or write about us? I said to her, "If you were to read Landen's blog then you would know that I do in fact write about you and Zach." I also explained to her that there are individuals out there who are contemplating on having an abortion or give their baby away because the simple fact that they are pregnant with a child diagnosed with Spina Bifida and we don't want that. So long story short she understood and was ok that I don't have a specific blog just for her(even though she totally deserves one!)   =)

Lexi...Where to begin? She's 15 yrs old and 5 mos. She's beautiful,smart,witty,funny,mischevious,caring,loving, sensitive,modest,a good listener, a great sister, has lots of great friends and when she drives she rides the white line(makes me nuts)... I could go on and on and on. She makes me proud, makes me laugh(she has LOTS of blonde moments) and I am oh so lucky to be her mom. On a daily basis I will catch her reading the scriptures, being a therapist to her friends(I told you she is a good listener)doing laundry to help me out, and complaining because "we have no food in this house" really what she means is... we don't have Mcdonalds fries or nuggets. She's the greatest and I love her so much!

Zach... well, he just got a hair cut and looks Sooooo handsome! He's a sportsaholic(is that a word?) He just finished basektball and is already playing baseball and he's already trying to figure out what's next after baseball. He lives for hunting and you can catch him in his deer stand shooting squirrels that are just trying to get a nut(as Ron says!) He loves Reece's, grits,cocoa pebbles,yogurt,ice cream, Mcdonalds,CiCi's and macaroni. (he's not picky or anything =)
He LOVES scaring people but HATES being scared???
He wants to be either a professional baseball player or Hockey player. Either way he has agreed that when he makes the big leagues, he'll provide Ron and me with $30,000 a month and a motor home so we can travel around and watch him play. What a deal!!! He told Lexi he would give her $10 a month. =)
He's a great big brother and Landen LOVES him more than he loves anyone else in the family.(not joking) Landen will totally look up to Zach!  I am so lucky to be his mom!

Landen... He's 10 mos 2 weeks and a 1 day. He's awesome! He loves oatmeal and pears, Good Start formula, cheese puffs, Mcdonalds fries, his wagon, ANY ball of any kind. Soccer ball, basketball, baseball,football,soft ball, hard ball, pink ball, green ball, ANY BALL! We've actually changed his birthday theme from monkeys to balls! His new word is ball and sometimes it sounds like he is saying "my ball".  He loves watching people, children play at therapy, being outside,chewing on whatever fits in his mouth and getting his way!

Ron... He's a loving husband and father(the best). He too is a sportsaholic(again, is this a word?)He loves his Clemson Tigers =) (ha ha ha ha ha) just kidding. He loves his Gamecocks and Winthrop Eagles. He loves a ball too, just not pink. He likes to travel, SHOP(I know right), he likes to eat out, play cards,watch t.v, shoot his new gun(no it's not a BB gun and yes it is put up in a safe place away from the kids and on lock for those who may be wondering)He's smart, funny, loving,kind, protective, trustworthy, amazing husband with lots of other great qualities! I have been blessed with such a great man.

Me...I don't like to talk about myself but I will say that I am a loving mother that adores her family and would do ANYTHING in the world for them. I am an over protective mom, I don't like being judged before you meet me (judge away after you meet me.) I used to be this shy little girl who didn't want to speak her mind for fear of hurting someones feelings but as I have gotten older, I speak my mind and if you don't like it, I don't care. I am a home body who loves to clean. I hate cooking but I like to bake.  
I love being a mom of a child with different ABILITIES! I am a krispy kreme junkie. I love flannel blankets and flannel pj's. I prefer the mountains over the beach UNLESS we are in the Bahamas. Dislike Zumba b/c things go one way when it's supposed to be going the other and things jiggle in places they aren't supposed to. I love the smell of my husbands cologne, and the smell of Landen after a bath and a dab of baby lotion. I am a GREAT mother and I know what's best for my children!

We are a down to earth family with lots and lots and lots and lots of love! Family is the most important thing to us. We would love to adopt another child with Spina Bifida but would take any child that just needs to be loved and cared for regardless of what "ABILITIES" they may have! We thank God for all that we have and give thanks to him daily!

Just a quick FYI~

For individuals who may read my blog and not like something that is posted or you don't like the pictures that I put up then please move on to the next blog! I've taken down pictures in the past b/c some people didn't like the pictures and questioned my ability and knowledge of taking care of my Landen. I realize that everyone is entitled to their own opinions(just don't post them on Landen's website! We have listed our e-mail at the top of the page so if you have concerns or questions regarding my knowledge to care for my children please contact me via e-mail b/c I would love to respond to you. Again, this blog is about raising awareness about Spina Bifida. This blog is to show others just how happy,smart,healthy,and normal kids with Spina Bifida are. This blog is about Landen and our family and how happy, blessed,lucky,and how totally in love we are with our baby that was born with Spina Bifida!

With lots of love,

The Blacks 

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