Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Wednesday, March 2, 2011

My baby is growing up =(


Feb 28th, 2010 Landen turned 10 mos old! My baby isn't a baby anymore =(  

He's graduated from an infant car seat to a toddler car seat, he got his AFO's (which are oh so cute!) He will be getting his stander in a week or two, he has 4 teeth. (2 on top and 2 on bottom) and he's learning new things every day. He has learned how to do Pat-a-cake Pat-a-cake(we worked on this for about 2 months and he's finally doing it) It's the most ADORABLE thing ever!! I would post a video of him doing it but as soon as he sees the camera come out he stops!

He LOVES a ball...any ball and he's getting really good at throwing it. We were on our way to Greenville Monday and I saw him swinging his arm up and down but I wasn't sure which way he was going to fling it so I was aware that I might get hit in the head with a foam baseball while driving but he ended up throwing it all the way in the back of the van. =)   He was quiet upset and couldn't understand WHY I wasn't getting the ball and giving it back to him. (he has strawberry/blonde hair so he has a temper too!)

We got to Advanced Prosthetics in Greenville where they put the AFO's on him and as we waited 30 minutes to make sure they fit his cute little feet and legs perfectly with no redness, we met some wonderful people from Virginia that had brought their sweet,handsome, and very smart soon to be 14 year old son named Cameron who also has Spina Bifida. He was also getting his AFO's. He walks unassisted, plays church basketball and baseball, catherizes himself and is very independent. His level is L3 which is a step higher than Landen's. How amazing is God?

After leaving Advanced Prosthetics, we headed to the Gaffney outlets to get him some new kicks. We finally found some at Stride Rite b/c they were the only place that had extra wide shoes. He's now in a 4 extra wide. They make absolutely no cute shoes in extra wide. WHY NOT? We went to babies R us this past weekend to get Landen's car seat and we found some AWESOME converse shoes but NO EXTRA WIDE.Oh well, some things are more important but I want my boy to wear cute shoes! Ron says we should just go to wal-mart or k-mart and get him some "smacks" ha ha ha....My boy WILL NOT wear those!

There are still many things to come for Landen. March 14th will be a very busy day for him. We have to be at Shriners at 9am for them to measure his right leg that is shorter than his left(hip dysplasia) and put a lift on his R shoe. Then it's next door to Greenville hospital at 9:30am for a swallow study to make sure he is not aspirating his food b/c he chokes and gags on some foods. I personally think it's just different textures that bother him.(we shall she!) Then he will be circumsized after the swallow study... thank goodness he has no feeling down there! PLUS.....Big L likes to yank and pull on his peeper. I'm not quiet sure why b/c again, he can't feel it. I guess it's like a new toy for him. I'm just concerned b/c he will have sutures in his peeper until they disolve or Landen yanks them out. Let's hope they disolve!

Landen LOVES LOVES LOVES LOVES his brother. Did I say LOVES? I have always wanted him to be a momma's boy and he is but he is his brothers boy! When he's with Zach, he doesn't have a care in the world and could care less where momma is! When Zach is holding him, he will not go to anyone else and will wave bye bye to you because he wants you to go away! I think it is the sweetest thing that he loves his "bubba" so much!

We went shopping yesterday at a huge consignment shop(For Every Season) they hold it 4 times a year(hence....4 seasons)
and I found lots of goodies for monkey. It's getting harder and harder to shop for the guy b/c 12 mos clothes fit but some are a little snug so we bought all 18 mos clothes that are a little big???? His wonderful Aunt(who loves him oh sooooooooo much bought him a cute bathing suit, some sandals, and a train with animals (which he played with for an hr after we got home!) We had a wonderful time shopping and Landen enjoyed it too!

RECOGNIZING MY DAUGHTER~

My daughter (Lexi) is such a great sister, daughter, and helper. I couldn't do it without her. She has grown into such a wonderful young woman and she is going to be an amazing mother some day! THANK YOU LEXI FOR HELPING ME ALL THE TIME WITH HOUSE WORK, LANDEN, ZACH'S HOMEWORK, LAUNDRY...ETC. You are the greatest and I am so proud of you and the person you have become! I love you.

That's all for now!

                                              Monkey with his ball!
                                          
                                    
                                                Enjoying a solo game of basketball
                                           His new leg warmers (AFO's) and new kicks

                                          Getting lost in his clothes while cleaning out his closet
                      His SEXY legs with his new AFO's

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