Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Saturday, September 15, 2012

"Focks, Baces, and Dilemas

Landen got his new focks (socks) and  baces (braces) the other day...Finally!! It's been 3 weeks since we have had any braces for Landen  since he is growing and gaining weight so quickly. His weight the other day...33lbs. Holy Cow..Yikes.. No wonder my back kills me!

Lots of Dilemas lately~
Dilema 1.~  Landen has become terrified of vitalstim and it is absolute torture to try to get the probes on him. So, we are going to stop it for now and see how things go but it's not looking good.

Dilema 2.~Without vitalstim he will continue to aspirate and continue to throw up and he will always need the G tube. As of now he still throws up atleast twice a day...power vomits...not just a little spit up. We have probably spent well over $700 on car seats in the past 2 years b/c of how much he throws up in the car. In fact I just bought another one yesterday b/c you can only clean the car seats so much before they start stinking and you can't get that smell out.(So make that $800 on car seats!) =)

Dilema 3~ If Landen keeps gaining weight it's going to be really hard for him to walk and put weight on his little teeny tiny legs. Hellllloooooo chunky monkey!

On the upside of things~  Landen is the happiest little boy. He is loved beyond words, he loves his bubba and sissy like crazy, he is talking more and more, he has a great sense of humor, he knows how to melt my heart with his huggs and kisses, he is such a loving little boy, he is smart, he has his PT wrapped around his little finger, he is just a joy to have and I am blessed beyond words to be his mommy. Even the investigator that came to our house (for DSS Adoption) said, "Gosh, I've never seen a child sooooooo happy." She kept saying, "He really is happy all the time, isn't he?"
When I look at my sweet boy I think "My cup runneth over"

"TO BE A CHILD IS TO KNOW THE JOY OF LIVING,
TO HAVE A CHILD IS TO KNOW THE BEAUTY OF LIFE!"

HOMESCHOOL~

I've had several people ask how homeschooling is going and I want to say... I LOVE IT!!!! Both of my kids are very smart and I think most people have the perception that homeschooled kids don't do alot of work or they aren't smart...NOT TRUE! You have to have 24 units to graduate highschool...After this year, Lexi will have 25 and she's just a Junior. She will be going to a 2 yr College next year  (her Senior year) to earn double credits for graduation. Colleges LOVE that!

As far as Zach... He is too smart. All advanced courses and even taking Spanish(Rosetta Stone) with Lexi this year. He will have 2 yrs of a foreign language by the time he is a Freshman.

                                Other reason I LOVE homeschooling...

1. We use Abeka curriculum which is used in private schools and built on academic excellence and christian character. Public schools do not use these books because they teach from a Christian perspective....How sad is that? That's what is wrong with the world today!

2. We have the freedom to pray before school, during school, after school, bless our lunch, etc.  If these practices were allowed in schools I truly believe the schools would be a much safer place to be, kids would not be so unruly, less bullying, more well behaved kids. I also believe that these practices need to start in the home.

3. I can give my son the scriptures and have him read them as an elective and get credit for it instead of him taking some class where he has to carry an egg around and make sure he doesn't drop it! I'm sorry but carrying an egg around and "taking care of it like it's your baby" is a waste of time when you can teach your children GOSPEL PRINCIPLES AND TRUTHS!

These are just a few reason why I homeschool my children. It's not for everyone. I even had a mom at therapy the other day ask me why I am punishing myself by homeschooling, and adopting another special needs child... My answer to her... I LOVE my kids. I LOVE the fact that I have the freedom to teach my kids gospel principles at home and can add that to our daily curriculum. I also said... "Do you see him ( Landen)? Do you see how happy he is? That's why I want to adopt another special needs child. I can't imagine where he would be if he stayed with his birthmother. All I know is that he is happy, he is healthy, and he is MINE! I also told her that If I could financially afford it that my husband and I would have about 30 kids in our home... EVERYONE deserves to have a family...reagardless of their disabilities. Everyone deserves to be loved and to feel safe and to have a home with 2 parents that will love and protect them. THIS IS NOT A PUNISHMENT!!! Shame on her!!!


"TO BE A CHILD IS TO KNOW THE JOY OF LIVING,
TO HAVE A CHILD IS TO KNOW THE BEAUTY OF LIFE!"

 LANDEN IS DOING HIS SCHOOL WORK TOO!!!
 TAKING A BREAK FROM SCHOOL WORK TO EAT HIS LUNCH (THAT HE THREW UP LATER)..... =( 
 WATCHING A LITTLE TV WITH HIS BUILD A BEAR FRIEND

 READY FOR SOME CHURCH...
 USC MASCOT....GOOOOOOOO COCKS!!!

 













2 comments:

  1. First, let me say that your philosophy that everyone deserves a family to love them is amazing and beautiful! Some of your reasons for homeschooling are on my list of reasons, too. We need to move at my daughter's pace, and sometimes that is faster than I want her to go! I'm already looking into dual credit, even though my daughter is just in 7th this year. In my research for homeschooling high school I found LetsHomeschoolHighSchool.com. There is a lot of interesting info there on homeschooling high school. Thank you so much for sharing your story and your philosophy. We can learn a lot from you!

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    1. Thanks Linda! I am by no means an expert on homeschooling. I learn new things everyday~ I do enjoy it though. That's awesome about your daughter. The best of luck in homeschooling.Dual credit is the way to go...in my opinion! =)
      Thanks again! Tosh

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