AT THERAPY:
We have been waiting for a while now for Landen's therapist to get us a wheelchair that we could try out. Today we got the chance to try one out. The only thing was that we can only use it at therapy which sucks b/c I wanted to bring it home...and so did Landen. HE LOVED IT! As soon as Chrys put him in it he started saying, "Vroom vroom vroom". Gosh it was so cute I just wanted to cry. It didn't take him long to figure it out.
We have Tefra(a disability Medicaid) which I am thankful for b/c there is no way we could afford all the medical bills, medical equipment ,etc...BUT they drag there feet when it comes to ordering equipment. We waiting 6 mos to get Landen's stander(which he absolutely hates) and it will most likely take another 6 mos or so to get the wheelchair. Which sucks for me b/c he is getting HEAVY to lug around everywhere. He doesn't like his stroller so we have to take his car with us everywhere we go. Oh well. I shouldn't be complaining...THANK YOU MEDICAID FOR ALL THE THINGS YOU PAY FOR!!!
Just a few other things since the last time I posted~
(THIS ONE BOTHERS ME)
We got a call 2 weeks ago from our Attorney that we used for Landen's adoption. They were looking for an adoptive couple for a 4 week old little boy that was in the NICU in PA that is special needs. Of course I was ALL OVER THAT and happy as could be until I asked what the fees would be. Ron and I desperately want to adopt more children and welcome special needs children especially another child with SB. We have the room for another child, we have the love to give to another child, we have the time for another child, we have other children that WANT another brother or sister...but we DON'T have $26,500. That's what the fees were going to be and maybe a little more, he couldn't give me a total price but it would be "around" 26,000-27,000. "SHUT UP" was my response. Needless to say, we simply don't have that just laying around or sitting in our savings. :(
SHRINERS/MYELO CLINIC:
We went to Shriners last Thursday for a check up/xray/urine specimen etc. X-ray showed he has a curve in his spine which we were aware of. His hip is still out of socket and there is nothing we can do about that. The GREAT news is that we don't have to cath him. He's been off his antibiotic now for about 4-5 mos and his urine is clear and nothing growing as far as his cultures go. WONDERFUL NEWS. That's one less thing I have to worry about right now.
ALLENDALE ACADEMY:
Allendale Academy is the name of my daughters school.(She named it) Yes, Lexi is being homeschooled this year. She's in the 10th grade and I have to brag on her b/c she is very smart, self motivated, and looking to graduate early and start on College credits by her Senior year. It is challenging considering how busy I am with Landen but it's working out very well and she loves it.
Here's a few pictures of Landen in his "new ride"...actually it's not his ride, it's one to try out and use at therapy. He loved it. Sorry the pictures aren't that great. I took them with my phone.
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