Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Tuesday, December 6, 2011

Count your blessings...everyday!

Soooo Thankful for allllll  I have!!

Let me just say that I have been a little down and depressed today. I think everyone and I mean e.v.e.r.y.o.n.e. has those days where we complain about everything. Or we get sad that our children aren't walking yet, or they aren't drinking from a sippy cup like most toddlers, or saying phrases like every other toddler, or we complain that we have to drive ALL the time to therapy appts or Dr's appts and even complain that "my child is having another surgery". Yep, I think we all have those days where we get down and out about some stuff that we ultimately have no control over.

I can honestly say that from this day forward, I am THRILLED beyond words that my son has had all the surgeries that were required, that he has the opportunity to attend therapy 3 days a week, and that we have Shriners Hospital 2 hrs away for us to drive to, that he has a feeding tube, a shunt, a walker, a wheelchair(on order) and that we will eventually have to cath our son. I am DELIGHTED in all of this!!!! I am THANKFUL for all the medical care that he has gotten.  I know, you are saying...What? Are you crazy? Are you smoking crack(or whatever and however you use it) What's your problem? Thankful? Thrilled? Delighted?
Yes, I am!!

I met an Algerian mom on a Spina Bifida website and her son has Spina Bifida, hydrocephalus and got meningitis at only 3 mos old. Her son is now 27 mos old and has NEVER and yes I mean NEVER had one surgery! It's not because he doesn't need the surgery. There is no medical care in Algeria or no specialist that can handle the sort of surgeries that this beautiful boy needs. The mom wants us to adopt him and I've been trying to see what all needs to be done so we can...But our Adoption Attorney emailed me today and said that the chances of adopting this little boy is basically impossible. So, I've been on the internet trying to contact the Embassy of Algeria to get all the help and information that I need. This mother cries every single day and night for this child. He cannot lay on his back, he has no movement at all and his head is VERY large due to the hydrocephalus which has caused eye damage. This child just lays on his side! I will show you a picture of his back and maybe you will get some idea as to Just how grateful I am!






How grateful are you?

I would LOVE to adopt this child! I will continue to do what I can to help this family either get medical treatment for this beautiful boy or hope and pray that there is a way for our family to get him to the US and start the adoption process while he gets treatment!
Please pray for this family and pray for comfort for this little boy!

THANK YOU HEAVENLY FATHER FOR ALL THAT MY FAMILY HAS AND FOR ALL THE TREATMENT AND MEDICAL INTERVENTION THAT MY SON GETS.
I am indeed grateful!

This is Mounib, 27 mos old! Lives in Algeria, born with Spina Bifida, Hydrocephalus. Never had his back closed, does not have a shunt, never been to therapy, has never sat up and held his own head up, no eye exams, no hearing tests done, no CT's, X-rays, Ultrasounds, no AFO's. Please pray for him! For one day, lets stop thinking about OUR problems and think about how this family, mother may feel every single day of her life to see her child lay on his side all day, in pain, and sad. I simply can't imagine what his mother is going through or even how she feels. All I know is that I want this child to be healed!

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