Welcome

Landen has been (and is) such a priceless and eternal blessing to our family since his arrival. As you can tell, he's absolutely adorable and happy. We simply can't get enough of him!
As of August of 2013 we added another addition to our family, Brigit Nicole. She is missing part of her 3rd chromosome. We are still learning every day new things about her disability. We have a total of 4 kids and couldn't be happier!



The purpose of our site is to reach out to others who have Angels with Spina Bifida (or other special needs) for a supportive bond.

Please feel free to contact us @ ronandtosh@comporium.net



Friday, May 27, 2011

ROUTINE CHECK UP

Landen had his routine 6 mos CT, Renal Ultrasound, and CMG yesterday. He did not tolerate the CT nor the US like I had hoped he would. You can see by the pictures below just how unhappy he was...even after he got in the toy chest. His Prelim. report on his US was the same as last one... no reflux from his bladder (which is great news)His CMG went well. His pressures are normal for a 13 mos old with SB and we are hoping his urine tests are fine also. Ron and I had a wonderful time at Shriners. We absolutely love Shriners and GMH. I have teased Ron recently about just moving to Greenville considering all of Landen's specialists are there. I wouldn't mind moving to Greenville and neither would Ron but the kids...that's another story. Lexi says there is NO WAY she is moving. Guess it looks like we will be traveling back and forth to Greenville for now.

After we got home from a long day of tests and driving, I got a call from Dr Troup's office wanting to make a F/U visit from the CT done today. My response was, "We have the Spina Bifida Clinic in August, can we just wait to see him then?" Sure she said and we hung up. About 30 minutes later she called me back and said, "Dr Troup wants to see you next Tuesday at 1:45p in his office". I've been in the medical field for 13 yrs so I know that if a Dr calls back to schedule something ALOT sooner...it's never good news. So I asked her, "Is everything ok with his shunt? Was his CT normal?" She then said...."He may need a shunt revision and Dr Troup wants to talk to you about that."  GREAT NEWS...Just what I wanted to hear! This will be his 3rd shunt and he's only 13 mos. What is going on here??? GEEEEEZZ, can he not get a break? On the other hand, thank goodness we will be going to Greenville Hospital for this one and not Levine's. I know he will be taken care of by Dr Troup and his wonderful Neuro team. 



You can see by the pictures he hated the CT and the US!







                     Ok, so he looks pretty content during these pictures but he SCREAMED through most of
                     the tests!!!


That's it for now, please pray that Landen will do well during his next surgery (whenever that may be) and that this shunt will do what it is supposed to do and NOT malfunction and cause him to have to have yet another surgery!

1 comment:

  1. A fan during a CT that's a great idea! And you were able to hold his hand? Or did you have to leave when they started?
    And it's nice to know that I'm not the only crazy mom taking pictures during these kinds of tests.

    ReplyDelete